I haven’t sat down for 30 years because of my painful, rare condition
A woman from Poland hasn’t sat down in 30 years due to a rare medical condition.
Joanna Klich, 32, sat down when she was a toddler, according to her mother — but she doesn’t remember ever sitting.
Klich has a rare, debilitating condition that has fused her hips to their joints and is terrified her legs will “fail at any moment,” making it impossible for her to stand.
The genetic condition has been loosely diagnosed as spinal muscular atrophy, which weakens muscles and impairs movement, as well as central core disease, which does the same.
“I can never sit down — all I can do is stand,” Klich told PA Real Life.
“My mum told me I sat down as a small child, but I don’t remember that
From what I can remember, I couldn’t sit or walk but I could do things for myself, like go to the toilet or get up from bed,” she said.
But her condition wasn’t always so debilitating. Klich lived a “normal life” working and studying in Poland until she was 21 years old.